Purpose: This toolkit provides strategies, tools, and learning resources to advance LGBTQIA+ inclusion in clinical research studies across the world.
Learning Resources — Collecting Sexual Orientation and Gender Identity Data
Creating Welcoming and Affirming Clinical Studies for LGBTQIA+ Participants Toolkit
This toolkit focuses on the implementation stage of training sites to successfully engage and retain LGBTQIA+ participants. Within the toolkit, you will find information on foundational LGBTQIA+ concepts and terminology, best practices for affirming transgender and gender diverse participants, and recommendations for collecting SOGI data as part of participant demographics. By learning these competencies, all study staff can become skilled and confident in supporting the dignity of LGBTQIA+ participants, and ultimately, can contribute to improving health equity for LGBTQIA+ communities.
Cultural Adaptation of Measures and Tools for Sexual Orientation and Gender Identity (SOGI) Data Collection
This publication was designed as a companion resource to Ready, Set, Go! Guidelines and Tips for Collecting Patient Data on Sexual Orientation and Gender Identity (SOGI) to explain the importance of SOGI data collection to identify and address the unique needs of sexual and gender minority patient populations, with special consideration for culturally and linguistically diverse patients who are part of LGBTQIA+ communities. This guide will help healthcare staff to identify procedures to translate and adapt SOGI data collection questions and patient education materials for multilingual patient populations accurately and affirmatively, with considerations for Spanish-speaking LGBTQIA+ patients as an example. The recommendations in this publication will assist health teams in planning next actions to implement culturally and linguistically affirming practices that are community informed and integrated throughout the health experiences of multilingual, multiethnic, and racially diverse patients.
Cultural Adaptation of Measures and Tools for Sexual Orientation and Gender Identity (SOGI) Data Collection
This webinar will highlight opportunities to adapt SOGI data collection measures and tools through culturally and linguistically affirming approaches, to better serve multilingual, multiethnic, and racially diverse communities. Participants will hear from bilingual-bicultural researcher Carlos Rodriguez-Diaz, PhD, MPHE, MCHES who will share his experiences developing culturally relevant strategies with Spanish-speaking communities, and Dr. Alex Keuroghlian, MD, MPH, who will highlight SOGI resources from the National LGBTQIA+ Health Education Center.
Collecting Sexual Orientation and Gender Identity Data (AESGM 2023)
In this presentation from the March 2023 Advancing Excellence in Sexual and Gender Minority Health Education conference, Chris Grasso and Juwan Campbell discuss why and how to collect Sexual Orientation and Gender Identity (SOGI) data, as well as how to implement SOGI data collection at your health center.
Collecting Gender Identity Data in EHR and Addressing Quality of Care
In this talk from the 2022 Advancing Excellence in Transgender Health Care Conference, Chris Grasso discusses collecting gender identity data in EHR and addressing quality of care. This presentation will enable you to summarize how to incorporate GI data collection into your workflow using your EHR, and quality improvement techniques to improve communication, quality care, and data and quality management activities; identify at least one method to actively engage and educate staff on the importance of collecting and using GI data, how to do so, the data's impact on health disparities, and how GI can be used to direct education and clinical practice; and identify at least one training, tool, or other resource to assist your health center in collecting and using Gl data.
Ready, Set, Go! Guidelines and Tips For Collecting Patient Data on Sexual Orientation and Gender Identity (SOGI) – 2022 Update
This guide was designed to help health centers and other health care organizations successfully collect sexual orientation and gender identity (SOGI) data and document the data into the electronic health record (EHR). For those just beginning the process, this guide can be used from start to finish. If you already have a system, but have encountered challenges and questions, this guide can help you address them. Even if your system is working smoothly, you will find resources and recommendations here that will help you move to the next level of data collection and analysis.
Collecting Gender Identity Data in EHRs
In this talk from the 2021 Advancing Excellence in Transgender Health conference, Chris Grasso and Juwan Campbell discuss the importance of and how to collect gender identity data in EHRs.
LGBTQIA+ Patients and Social Determinants of Health Screening and Documentation
In this webinar, Dr. Bisola Ojikutu discusses screening for Social Determinants of Health (SDOH) for lesbian, gay, bisexual, transgender, queer, intersex, asexual and other gender minority (LGBTQIA+) patients. Webinar content will focus on SDOH disparities for LGBTQIA+ people, existing screening tools, and their adaptation for culturally affirming screening and referral for LGBTQIA+ people.
Collecting Sexual Orientation and Gender Identity (SOGI) Data (Fall 2020)
In this webinar, Chris Grasso, Vice President for Health Informatics and Data Services and Mason Dunn, Deputy Director for the Division of Education and Training at Fenway Health, discuss best practices for health centers to collect patient Sexual Orientation and Gender Identity (SOGI) data and document SOGI in electronic health records. The training will focus on analyzing and using SOGI data for clinical decision-making and monitoring health disparities, and if, when, and how the collection and analysis of employee SOGI data can inform practices in HR, including policies for hiring, onboarding and retention.
